Dec. 3

I'm late posting today because I have just returned from the pharmacy, where I was trying to pick up Avi's much needed prescriptions for pain management.  I wasn't allowed to, because of our wonderful insurance company refusing to cover an increase in dosage.  Or they aren't understanding the increase in dosage.  We're all a little unclear about that right now.

I could have gotten mad this morning, frustrated, screamed, cried, but the first thing I did was call our doctor's office and asked them for help straightening this out.  They know us there, by name, face, and voice.  We probably didn't say thank you enough, or let our fear, frustration and sadness get the better of us one too many times.  These people are the ones who would make sure it was possible for me to spend the night with Avi in the hospital, even though I wasn't supposed to, so he wouldn't be alone.  They were kind, loving and caring even when we weren't feeling the same.  They always had a friendly face, time to answer questions, help when we needed extra hands, and added another voice when lecturing Avi on what the pain scale really was.  They brought us a cake, the day after our wedding when instead of on our honeymoon, we were in the Infusion Center getting blood tests and platelets.

This post isn't going to be about the health care system, the insurance companies, or the drug companies.  Too many people have told me how amazing I am for doing all of this.  I want you to know I didn't do it alone.  I am amazing because I was surround by an amazing medical team who helped keep our family together.  The people who have fought for us not only today to get his meds,  but for the past two years to help him survive.  We have an amazing team of doctors, nurses and support staff that helped make the past two years possible.  We will never be able to say thank you enough and they are what I am really grateful for today.  Grateful for helping me have one more day.